Today marks William's 2 weeks milestone. So much can happen in one week.
Last week at this time, I was feeling completely distraught and it was very difficult for me to make myself take that 1 week photo.
Today, even though we're dealing with more complications, William has overall been responding well to the support he is on and for now seems to be in a slightly less dangerous place.
He pooped a little again overnight and today.
Today was actually a bit up and down again (and I continue this post later in the day). He really doesn't like being messed with (poked or moved or anything really) and his vitals reflect that. It's hard to see him not doing as well. Jeff and I got in a decent amount of contact time today, and William's eyes are opening all the way now sometimes. That's pretty exciting for us.
So the big news for today were the results of another brain ultrasound. Last week, some of it was inconclusive, but this week we could definitely see where some of his brain tissue/cells seem to have died and other areas that may soon be affected. It looks to be very likely that he will face some kind of disability, be it blindness or lack of control in his legs, or all of the above and then some. Too hard to tell at this point. That, plus all of the other things William has been dealing with made it hard for us to want to leave him today.
By the time we left, we had had to turn up some of his meds and breathing machine settings again, and that's scary for us. Once that happened, he seemed to have ok vitals again, but the question still is: how much longer can William sustain this?
His blood cultures have still been returning positive, meaning he still has the infections in his system. So he'll have to stay on antibiotics for a while. we pray the meds will be able to wipe out the harmful bacteria in his system soon so he can get at least the tube out of his belly so he can get milk.
